罕见疾病致“过学死”

Rare disease means student could die if she studies too hard

中国日报网 2014-05-30 10:16

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Many teenagers have a phobia of exams - but for Jennifer Lloyd it could KILL her.

Brainy Jennifer has a rare condition called Addison’s disease, meaning her body reacts to stress by shutting down her vital organs instead of producing adrenaline.

It means she has turned down a chance to apply to Oxford or Cambridge University and is stretching out her AS-level revision out over several months.

Jennifer, 17, said: “It’s very tough when it gets to exam season as I have to balance my time perfectly.

“The illness leaves me very tired, so my mum often finds me asleep in my books while I’ve been studying.

“I know I can’t let myself get unnecessarily stressed out, so I have to be much more organised than my friends.

“As a result I have a strict schedule where, if I do an hour of revision, I have to rest for two hours before doing any more.

“It means I can be short on time so I start preparing weeks in advance of everyone else to fit everything in.”

The student, from Prestwich, Manchester, is studying at Pendleton Sixth Form College which offered her the chance to look at Oxford and Cambridge under its ‘gifted and talented’ scheme.

She turned it down, adding: “It is such an honour - but I just don’t feel ready to move away yet.

“My college has been incredibly supportive - my teachers know the danger signs and can call my mum straight away if they think I’m getting ill.

“I did most of my revision last year hooked up to a drip in hospital - my weight dropped to 5st10lb because my stomach stopped absorbing fats.

“I was thrilled when I managed to gain 10 A grades and 2 A*s though - all the stress paid off!”

If Jennifer doesn’t receive rapid treatment, her eyes roll to the back of her head and she starts vomiting, requiring urgent hospital treatment.

She now carries a hydro-cortisone injection at all times to stop the disease.

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许多青少年有考试恐惧症——但对于珍妮弗•劳埃德来说，考试会杀了她。

聪慧的珍妮弗患了一种罕见的疾病叫做阿狄森氏病，她的身体通过关闭她的重要器官去反抗压力，不产生肾上腺素。

她已经拒绝了申请牛津或剑桥大学的机会，她准备中学准高级水平考试已经几个月了。

17岁的珍妮弗说：“当考试季来临时，这对于我来说真的很艰难，我必须平衡我的时间。

“这种病让我感到很累，所以我妈妈经常发现我在学习时会趴在桌子上睡着。”

“我知道我不能让我自己总是感到不必要的压力，所以我必须比我的朋友更有组织性。”

“因此我有一个严格的时间表，如果我做了一个小时的复习，那么我在做其他事之前就需要休息两个小时。”

“这意味着我总是缺少时间，所以我提前几周准备去适应一切。”

来自曼彻斯特，在彭德尔顿六年级学院学习的学生，给她看了牛津和剑桥的资优教育计划。

她拒绝了，并补充道：“这是一种荣誉,但我并没有准备好。”

“我的大学已经得到了令人难以置信的支持——我的老师知道我身体的危险信号，如果他们认为我生病了可以马上打电话给我妈妈。”

“去年我在医院做了大部分的复习，我的体重降至了10磅，因为我的胃已经停止吸收脂肪。”

“当我的成绩得到了10个A和两个AS后我真的很高兴——所有的压力都得到了回报!”

如果詹妮弗没有得到及时的治疗，她的眼睛会向后翻并且会开始呕吐，她要求紧急住院治疗。

现在为了阻止疾病的复发，她在注射一种氢化可的松的药物。

（译者 1101成玮瑜编辑丹妮）

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